‘Will nan and grandad look after her in heaven?’: Heartbreaking question four-year-old boy asked his parents when told his newborn baby sister was going to die
- Katie Roy gave birth to tiny Kaila Leigh Narciso, who weighed just 3lbs 11oz
- Family would later be told that the tragic youngster had only weeks to live
- She was diagnosed with Trisomy 18, which causes stillbirths in half of cases
- Ms Roy has described the heart-breaking moment her son asked about her sister
- Four-year-old David asked her: 'Will nan and grandad look after her in heaven?'
Katie Roy from Meliden, Wales, gave birth to tiny Kaila Leigh Narciso just 24 days ago
A mother whose newborn daughter had just weeks to live has spoken of the moment her four-year-old son asked whether her grandparents will look after her in heaven.
Katie Roy from Meliden, Wales, gave birth to tiny Kaila Leigh Narciso just 24 days ago.
Weighing just 3lbs 11oz, the five-week premature tot immediately began to struggle and needed a ventilator to breathe.
Medics diagnosed Kaila with Trisomy 18 - also known as Edwards Syndrome - which causes 50 per cent of babies born with it to be delivered stillborn.
But her family are determined to make every last second with her count, and have been staying together at Claire House Children's Hospice, in Wirral.
Katie's four-year-old son, David, is convinced his baby sister will grow 'golden wings' so she can fly up to heaven.
Speaking of the moment she told her son of the short time Kaila would have on this earth, Katie told The Mirror: 'He immediately replied "will nan and grandad look after her?"
Katie's four-year-old son, David, pictured parents Katie and Tjay Narciso, is convinced his baby sister will grow 'golden wings' so she can fly up to heaven
Upon being delivered medics had to resuscitate Kaila because she was not breathing and she was put on a ventilator for 12 hours.
'It's devastating but I'm so proud of how he's coping.'
Katie, a nurse, spent the majority of her pregnancy in hospital following a series of unexplained complications.
The brave mother lost her sight for around six weeks.
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And after 30 weeks, doctors detected a buildup of extra fluid - indicating her waters were at risk of breaking.
Ms Roy endured numerous blood tests and scans, but nothing abnormal was detected expect for a bowel blockage.
But upon being delivered medics had to resuscitate Kaila because she was not breathing and she was put on a ventilator for 12 hours.
Medics diagnosed Kaila with Trisomy 18 - also known as Edwards Syndrome - which causes 50 per cent of babies born with it to be delivered stillborn
The tiny baby was rushed for emergency bowel surgery where she had a blockage removed and two stoma bags were inserted.
The family would be given the devastating diagnosis soon later.
'We were heartbroken to be told Kaila only had weeks left and that we could either take her home or to a hospice and enjoy the time she is giving us,' Ms Roy added.
The family decided to move the tragic youngster to a hospice.
A JustGiving page has now been set up to help support the family financially and contribute towards funeral costs when the time comes.
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