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5 for Good: Mother's love fuels service program for young adults with disabilities

Club SMILE Mass provides workout classes, resources and community for families

5 for Good: Mother's love fuels service program for young adults with disabilities

Club SMILE Mass provides workout classes, resources and community for families

AND APP IN TONIGHT’S FIVE FOR GOOD A MOTHER’S FIERCE LOVE FOR HER SON AND NO QUIT ATTITUDE FUELS A PROGRAM FOR ADULTS WITH DISABILITIES THAT STANDS ALONE. HERE IS AN INTRODUCTION TO CLUB SMILE MASS. GO, JAMIE, CAN I GET HIGH FIVE GETTING MOVING. IT STRENGTHENS THE BODY. GOOD MAN TWO AND THE MIND IN SO MANY WAYS I THINK IT’S GREAT FOR BRAIN STIMULATION AND HELPING FOLKS USE THEIR ENERGY. FIVE SIX TREVOR FISHMAN LEADS WORKOUTS FOR CLUB SMILE MASS MONDAY THROUGH FRIDAY. WE PROBABLY SEE LIKE 1520 INDIVIDUALS EACH DAY FOR WORKOUTS. THE CLUB AT THE COMMUNITY CENTER IN SUDBURY ON THIS DAY OFFERS GYM TIME, POOL TIME, SOCIAL MEET UPS AND MORE. THE SMILE MASS IS SORT OF A LIFELINE. WHEN MAGGIE WAS FIRST FINISHING UP WITH SCHOOL LYNN IS TALKING ABOUT HER 23 YEAR OLD DAUGHTER. LIKE SO MANY YOUNG ADULTS WITH DISABILITIES, JUST BECAUSE MAGGIE AGED OUT OF THE SPECIAL ED SYSTEM, DIDN’T MEAN SHE WAS READY TO STOP LEARNING OR GROWING. THERE’S SUCH A NEED, DESPERATE NEED. I DON’T THINK THERE IS REALLY ANYTHING LIKE THIS. IT WAS ANOTHER MOM WHO BUILT THIS PROGRAM UP, UP HERE, WORKING WITH HER SON NICHOLAS. I ALWAYS KNEW I WANTED TO BRING A PROGRAM TOGETHER FOR NICHOLAS TO SO HE CAN GRACEFULLY GROW OLD, SURROUNDED BY LIKE MINDED PEOPLE, HAVE FUN, BUT STILL HAVE THE OPPORTUNITY TO BE WELL STIMULATED AND CONTINUE TO LEARN. IT SHOULDN’T BE A PRIVILEGE TO BE LIKE THAT. NICHOLAS WAS BORN WITH A NEUROLOGICAL DISORDER. LADIES DAYS START BEFORE DAWN. HE NEEDS THAT CARE. 24 OVER SEVEN AND YOU KNOW HE CAN’T GET OUT OF BED WITHOUT ME OR WITH SOMEBODY ELSE. SOMEONE LIKE MY SON HAS 24 SPECIALISTS AT CHILDREN’S HOSPITAL. BUT LOTTIE SAYS MISSING OUT ON JOY IN LIFE WAS NEVER AN OPTION. DESPITE THAT, HE IS MEDICALLY COMPLEX, PHYSICALLY DISABLED AND NONVERBAL AND HAVE SEIZURE DISORDERS AND ALL THESE OTHER THINGS. HE’S A HUMAN FIRST, AND SO LOTTIE FOUNDED SMILE MASS, THE NONPROFIT STARTED WITH ACCESSIBLE PLAYGROUNDS AND PROVIDING TOWNS AND FAMILIES WITH ADAPTIVE EQUIPMENT LIKE BIKES AND FLOATING BEACH WHEELCHAIRS. THEN CAME THE CLUB. ALL THE CLIENTS THAT WE SERVICE DIRECTLY, WHICH IS ABOUT 70 CLIENTS RIGHT NOW. WE HAVE A WAIT, BUT WE CAN’T INCREASE OUR SCHEDULE WHERE WE ARE BECAUSE THERE’S JUST NOT MORE SPACE BUILDING THEIR OWN ACCESSIBLE SPACE IS THE GOAL. THE SMILE HERE STANDS FOR SMALL MIRACLES IN LIFE EXIST. THIS COMMUNITY IS HOPEFUL. A SMILE MASS PROPERTY WILL EXIST IN SHORT ORDER. MOVING IS SO IMPORTANT FOR EVERY HUMAN BEING, AND TO HAVE THIS GROUP TYPE MEANS HE’S NOT DOING IT WITH ME. HE’S DOING IT WITH SMILE MASS. HE’S DOING IT WITH HIS FRIENDS IN THE CLUB, WHICH IS FANTASTIC. NICK. OH, THEY NEED THAT, THAT PEER SUPPORT. IT’S SO IMPORTANT. OH, ABSOLUTELY. AND THEY LOVE THE PROGRAM AND THERE NEEDS TO BE MORE. SO OBVIOUSLY THEY WANT TO BUILD THEIR OWN CLUBHOUSE. THEY’VE ALREADY IDENTIFIED A 30 ACRE PROPERTY. IT SITS IN SUDBURY AND FRAMINGHAM MARIA. YES, THEY’VE ALREADY AGAIN IDENTIFIED IT. SO NOW THE FUNDRAISING IS UNDERWAY SO THAT THEY CAN PURCHASE IT AND MAKE RENOVATIONS, AND PEOPLE CAN FIND OUT HOW TO SUPPORT THAT AND SMILE MASS ON WCVB.COM I GET EMAILS FROM SO MANY PARENTS ABOUT HOW THERE’S A LACK OF GREAT SERVICES THROUGH THE AGE OF 22, BUT THEN ONCE YOU KIND OF TRANSITION AND BECOME AN ADULT, EVEN THOUGH THEY MAY NOT BE FULLY READY TO D
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5 for Good: Mother's love fuels service program for young adults with disabilities

Club SMILE Mass provides workout classes, resources and community for families

A Sudbury-based program is helping young adults with disabilities continue to learn and grow after aging out of the special education system.An adaptive exercise coach, Trevor Fishman leads workouts for Club SMILE Mass, Monday through Friday."It's great for brain stimulation and helping folks use their energy,” Fishman said. "We probably see like 15 to 20 individuals each day for workouts."The program utilizes a facility in Natick and the Fairbank Community Center in Sudbury for gym classes, swim classes, social meetups and much more.Lynn Waskelis called SMILE Mass a lifeline for her 23-year-old daughter Maggie Newell when she finished school.“To be getting regular really quality exercise and to be having these chances to have a regular group of friends, which is, for Maggie, really important,” Waskelis said. “She's a social person.”Another mother, Lotte Diomede, built the program, understanding the need because of her son Nicholas, who was born with a neurological disorder."I always knew I wanted to bring a program together for Nicholas so he can gracefully grow old surrounded by like-minded people, have fun but still have the opportunity to be well stimulated and continue to learn,” Diomede said. “It shouldn't be a privilege."Diomede said her days start before dawn."He needs that care 24/7 ... You know, he can't get out of bed without me or somebody else,” she said. "Someone like my son has 24 specialists at Children's Hospital."Despite the enormous challenges, Diomede said missing out on joy in life was never an option."Despite that, he's medically complex, physically disabled and nonverbal, he's a human first," she said. "As a mother on a mission to make the world better, I feel it's our obligation as adults to try and set up the world a little bit better."When Diomede founded SMILE Mass, the nonprofit was focused on making playgrounds accessible and providing towns and families with recreational equipment like adaptive bikes and floating beach wheelchairs, then, she developed Club SMILE Mass."All the clients that we service directly, which is about 70 clients right now, we have a waitlist,” she said. “We can't increase our schedule where we are because there's just not more space to do so."She said having their own accessible building and property is the goal of SMILE Mass. A 30-acre property that sits in Sudbury and Framingham has already been identified, and fundraising is underway.Find information about supporting SMILE Mass here.

A Sudbury-based program is helping young adults with disabilities continue to learn and grow after aging out of the special education system.

An adaptive exercise coach, Trevor Fishman leads workouts for Club SMILE Mass, Monday through Friday.

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"It's great for brain stimulation and helping folks use their energy,” Fishman said. "We probably see like 15 to 20 individuals each day for workouts."

The program utilizes a facility in Natick and the Fairbank Community Center in Sudbury for gym classes, swim classes, social meetups and much more.

Lynn Waskelis called SMILE Mass a lifeline for her 23-year-old daughter Maggie Newell when she finished school.

“To be getting regular really quality exercise and to be having these chances to have a regular group of friends, which is, for Maggie, really important,” Waskelis said. “She's a social person.”

Another mother, Lotte Diomede, built the program, understanding the need because of her son Nicholas, who was born with a neurological disorder.

"I always knew I wanted to bring a program together for Nicholas so he can gracefully grow old surrounded by like-minded people, have fun but still have the opportunity to be well stimulated and continue to learn,” Diomede said. “It shouldn't be a privilege."

Diomede said her days start before dawn.

"He needs that care 24/7 ... You know, he can't get out of bed without me or somebody else,” she said. "Someone like my son has 24 specialists at Children's Hospital."

Despite the enormous challenges, Diomede said missing out on joy in life was never an option.

"Despite that, he's medically complex, physically disabled and nonverbal, he's a human first," she said. "As a mother on a mission to make the world better, I feel it's our obligation as adults to try and set up the world a little bit better."

When Diomede founded SMILE Mass, the nonprofit was focused on making playgrounds accessible and providing towns and families with recreational equipment like adaptive bikes and floating beach wheelchairs, then, she developed Club SMILE Mass.

"All the clients that we service directly, which is about 70 clients right now, we have a waitlist,” she said. “We can't increase our schedule where we are because there's just not more space to do so."

She said having their own accessible building and property is the goal of SMILE Mass. A 30-acre property that sits in Sudbury and Framingham has already been identified, and fundraising is underway.

Find information about supporting SMILE Mass here.