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Doctors, parents frustrated over critical cancer drug shortage

Vincristine is one of the most common chemotherapy drugs for childhood cancer

Doctors, parents frustrated over critical cancer drug shortage

Vincristine is one of the most common chemotherapy drugs for childhood cancer

HERE AT HOME TOO. >> ALWAYS HAPPY BUT IN THE FIGHT FOR HIS LIFE - 6-YEAR-OLD KALEB JONES WAS DIAGNOSED WITH LYMPHOBLASTIC LEUKEMIA EARLIER THIS YEAR. >> "HE’S BEEN ON AN INTENSE CHEMO JOURNEY >> HIS CANCER - IS IN REMISSION NOW - BUT HE’LL STILL NEED CHEMO FOR ANOTHER TWO YEARS TO MAKE SURE IT STAYS THAT WA AND SOME OF THOSE DRUGS ARE IN SHORT SUPPLY >> "HE’LL HAVE AN APPOINTMENT ON MONDAY AND I’LL FIND OUT BUT THE LAST I WAS TOLD FROM OUR DOCTO IS THAT HE WASN’T GOING TO RECEIVE IT." >> OVER AT CHILDREN’S MERCY HOSPITAL. >> "FOR CHILDREN WITH CANCER, VINCRISTINE IS ONE OF THE MOST COMMON CHEMOTHERAPY AGENTS WE USE." >> ONCOLOGIST CHIEF DR. ALAN GAMIS SAYS VINCRISTINE IS IN SHORT SUPPLY EVERYWHERE >> "WE LEARNED OF IT THE SAME TIME EVERYBODY ELSE DID IN T COUNTRY, THAT WAS SATURDAY OF THIS WEE SOME KIDS WHO ARE IN REMISSION WILL MISS DOSES AND DOCTORS ARE WORKING TO MAKE SURE THEY CAN MINIMIZE THAT IMPACT. >> "WE ARE UTILIZING THE BES EVIDENCE-BASED MEDICINE AN ADAPTING THEIR THERAPY >> BUT FOR BOTH DOCTORS AND FAMILIES - >> "THAT MAKES ME PRETTY ANGRY I JUST DON’T UNDERSTAND HOW IT’S ALLOWED TO GET TO THIS POINT." >> THIS IS A FRUSTRATING REALITY OF OUR HEALTHCARE SYSTEM. >> "WE FEEL LIKE WE’RE STARTING TO FALL BACK TO A THIRD WORL COUNTRY AT TIMES THERE’S NO EXCUSE FOR THIS SO HOPEFULLY OUR LEGISLATORS CAN COME UP WITH SOLU
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Doctors, parents frustrated over critical cancer drug shortage

Vincristine is one of the most common chemotherapy drugs for childhood cancer

In his Northland home Friday morning, Kaleb Jones, 6, is full of life and energy."I want that game," Kaleb says as he watches a YouTube video in the family room.But for Kaleb, this year has been nothing like a game. In February, he was diagnosed with acute lymphoblastic leukemia. "He's been on an intense chemo journey," his mother, Jessica Jones, said.Even though his cancer is now in remission, that chemo journey will have to continue for another two years as doctors work to make sure it stays in remission.One of the drugs used for Kaleb's chemotherapy, and thousands of other kids across the country, Vincristine, is now in short supply.Jones first heard that news earlier this week. "At the moment, I didn’t really understand the severity of it," she said "As the night went on, I started seeing posts about the shortage and I started reading about what different doctors were saying about how severe it was."Kids in hospitals across the country, including Children's Mercy where Kaleb goes, will have to miss doses of the crucial drug. Right now, Jones isn't sure if her son will be able to get his dose."He’ll have an appointment on Monday," she said. "But the last I was told from our doctor is that he wasn’t going to receive it."Doctors at the hospital said they heard news of this shortage the same time as everyone else."It came to us extremely fast," said Dr. Alan Gamis, chief of the oncology section. "So the past week we’ve been scrambling to come up with plans."Those plans mean that some kids will have to miss their doses until supply is back to where it should be, which has proven to be a moving target. Earlier in the week, hospitals were told by drug makers they may not get another shipment until next year. Now, the FDA estimated another shipment could be in later this month or next month. Doctors said the lowest risk kids, those who are in remission, will be the ones that may have to miss a dose or two. They're working to make sure those missed doses have the smallest effect."We are utilizing the best evidence-based medicine and adapting their therapy so it has the least impact, if any impact, upon their ultimate cure rate," Gamis said.Until this summer, there were two pharmaceutical companies that made Vincristine, Pfizer and Teva. According to the FDA, Teva made a "business decision" and stopped making the drug in July. Pfizer has had trouble with manufacturing since then, which led to the current shortage."That makes me pretty angry," Jones said. "I just don’t understand how it’s allowed to get to this point."Doctors agree, pointing out that this is just the latest in several shortages of drugs they've had to deal with in recent years. With some hoping lawmakers can create some kind of regulation or a safety net to prevent this from happening again."In the United States, this shouldn't be happening," Gamis said. "We feel like we're starting to fall back to a third-world country at times. There's no excuse for this."

In his Northland home Friday morning, Kaleb Jones, 6, is full of life and energy.

"I want that game," Kaleb says as he watches a YouTube video in the family room.

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But for Kaleb, this year has been nothing like a game. In February, he was diagnosed with acute lymphoblastic leukemia.

"He's been on an intense chemo journey," his mother, Jessica Jones, said.

Even though his cancer is now in remission, that chemo journey will have to continue for another two years as doctors work to make sure it stays in remission.

One of the drugs used for Kaleb's chemotherapy, and thousands of other kids across the country, Vincristine, is now in short supply.

Jones first heard that news earlier this week.

"At the moment, I didn’t really understand the severity of it," she said "As the night went on, I started seeing posts about the shortage and I started reading about what different doctors were saying about how severe it was."

Kids in hospitals across the country, including Children's Mercy where Kaleb goes, will have to miss doses of the crucial drug. Right now, Jones isn't sure if her son will be able to get his dose.

"He’ll have an appointment on Monday," she said. "But the last I was told from our doctor is that he wasn’t going to receive it."

Doctors at the hospital said they heard news of this shortage the same time as everyone else.

"It came to us extremely fast," said Dr. Alan Gamis, chief of the oncology section. "So the past week we’ve been scrambling to come up with plans."

Those plans mean that some kids will have to miss their doses until supply is back to where it should be, which has proven to be a moving target. Earlier in the week, hospitals were told by drug makers they may not get another shipment until next year. Now, the FDA estimated another shipment could be in later this month or next month.

Doctors said the lowest risk kids, those who are in remission, will be the ones that may have to miss a dose or two. They're working to make sure those missed doses have the smallest effect.

"We are utilizing the best evidence-based medicine and adapting their therapy so it has the least impact, if any impact, upon their ultimate cure rate," Gamis said.

Until this summer, there were two pharmaceutical companies that made Vincristine, Pfizer and Teva. According to the FDA, Teva made a "business decision" and stopped making the drug in July. Pfizer has had trouble with manufacturing since then, which led to the current shortage.

"That makes me pretty angry," Jones said. "I just don’t understand how it’s allowed to get to this point."

Doctors agree, pointing out that this is just the latest in several shortages of drugs they've had to deal with in recent years. With some hoping lawmakers can create some kind of regulation or a safety net to prevent this from happening again.

"In the United States, this shouldn't be happening," Gamis said. "We feel like we're starting to fall back to a third-world country at times. There's no excuse for this."