Local couple advocate on behalf of Cystic Fibrosis Foundation

STUART — On Jan. 16, Frank and Dee Spera joined other advocates in Tallahassee to participate in the 3rd Florida Advocacy Day.

These advocates spoke with their state legislators in support of Florida's 1,600 children and adults who live with cystic fibrosis, a genetic disease that affects the lungs and leads to respiratory infections and premature death.

The Speras' grandson lives with cystic fibrosis.

Since they learned of his diagnosis 3-1/2 years ago, the couple has devoted their retirement years to support the Cystic Fibrosis Foundation's mission to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives.

In Tallahassee, the advocates urged their legislators to keep in mind the needs of people with cystic fibrosis when considering health policies in the current session.

Two state programs that assist people with CF in Florida: the Children's Medical Services Plan and the Statewide Medicaid Managed Care Long Term Care program. Legislators were asked to adequately fund these essential programs.

Great strides have been made in the treatment of CF, due to the development of new, specialized drugs.

The cure for this genetic disease is on the horizon and advocates like the Speras will continue to spread awareness of the disease until CF will indeed stand for Cure Found.